Mar 20 Lyme Disease March 20, 2020
Uncategorized

We who suffer from chronic Lyme can only ask for our loved ones to try to understand and be compassionate about this invisible disease.

Yolanda Hadid

This why I think that lyme disease might be a problem in my life. I live on an acerage, I have a place my kids call the dark forest. Thick underbrush, with tall trees. I have many deer, moose and other animals that pass through there. The very same paths they use are the easiest way through.
They are the carriers of a small bug called a tick. They carry bacteria that causes lymes disease.

HEAD/FACE/NECK

  • Sore throat; difficulty swallowing, hoarse, phlegm ■■■■
  • Stiff & painful neck ■■■■
  • Jaw pain & stiffness ■■■■
  • Facial paralysis – Bell’s palsy HeadachesTwitching – facial & other muscles □
  • Tingling sensations ■■■
  • Facial/cheek flushing ■■■
  • Unexplained hair loss □ I am 62
  • Pressure in head; white matter lesions in brain (MRI) □ can’t get one been refused for that when I thought my symptoms suggest MS. The doctor told me that I had sleep apnea. He said he would order a sleep test ya you guessed never got booked.

RESPIRATORY, CIRCULATORY & CARDIOVASCULAR

  • Shortness of breath, air hunger – can’t get full breath, cough ■■■■
  • Endocarditis, heart blockage □ not sure
  • Heart palpitations ■ yup yup yup
  • Irregular heartbeat ■■■■
  • Chest pain/sore ribs ■■■ gotten worse over the last week
  • Night sweats, unexplained chills ■■■

PSYCHOLOGICAL HEALTH

  • Mood swings & outbursts ■■■■ more lately
  • Irritability ■■■■ I am not irritable just angry
  • Anxiety/panic attacks ■
  • Depression □ existing condition
  • Personality changes, obsessive compulsive disorder, paranoia, panic anxiety attack ■ ya ok
  • Feeling as if you are losing your mind ■■■
  • Too much sleep or insomnia ■■■
  • Difficulty getting to sleep or staying asleep ■■■
  • Disorientation – getting lost or feeling lost □□□

REPRODUCTIVE & SEXUAL HEALTH

Ya not answering

  • Sexual dysfunction
  • Loss of sex drive
  • Testicular or pelvic pain
  • Unexplained menstrual irregularity, pain
  • Breast tenderness, discharge

AUDITORY/EARS

  • Oversensitivity to sound ■■■
  • Decreased hearing in ear/s ■■■■
  • Tinnitus (buzzing &/or ringing in ear/s) ■■■■ three different kinds
  • Ear pain ■■■

MUSCULOSKELETAL

  • Muscle pain; migrating & cramps (fibromyalgia) ■■■
  • Muscle weakness, twitching ■■■
  • Bone pain ■■■
  • Joint pain (migrating) & possible swelling ■■■■■■■■
  • Stiff joints, neck, back ■■■■■■

VISION/EYES

  • Double or blurry vision ■■■■
  • eye pain & pressure ■■■
  • Oversensitivity to light ■■■ gotta wear shades out side on cloudy days
  • Increased floaters □□□ existing prob

COGNITIVE

  • Confusion – not thinking clearly ■■■■ brain fog two extreme incidences both times went to the emergency was treated extremely bad in Peace River hospital I was given a sobriety test by the doctor and refused healthcare. The other time was assaulted by the triage nurse with the BP cuff. Cut off the circulation in my arm till it was painful and beet red. When I tried to pull the cuff off. She swatted my hand away. Why ? I dared suggested that her favourite surgeon wasn’t so wonderful.
  • Difficulty with concentration, reading, writing, absorbing new information ■■■■■ during the brain fog sessions I had time talking or remembering words. I got stuck in an elevator for ten minutes because I couldn’t work the buttons, on my way down to emergency. Then I got the bad treatment from the nurse and then by the admin staff.
  • Forgetfulness ■■■■■  keep losing stuff. I really miss my Bluetooth headset and more
  • Poor short term memory, memory loss ■■■■ see symptom before this one
  • Disorientation (getting lost, going to wrong place) ■■■ mostly at home
  • Speech difficulties; slow/strained, (using wrong words, word-searching, stuttering) ■■■■■ go back four symptoms
  • Forgetting how to perform simple tasks ■■■ some days making coffee is like solving a murder mystery.

NEUROLOGICAL

  • Tingling sensations ■■■
  • Numbness ■■■
  • Burning or stabbing or shooting sensations ■■■ ya in my legs I was sure this was DVt but apparently those tests and the test for Lymes has high failure to detect rate
  • Dizziness &spinning ■■■ only when laying down not Bppv I experienced that before learned to correct it using a maneuver learned from the internet. Also taught it to the local docs at the clinic. Those were the good doctors now moved to other cities.
  • Head pressure ■■■■ only when laying down
  • Poor balance ■■■■ Fell 3 times pretty sure right now my elbow is fractured and I have two broken toes. One has stayed a nice shade of purple.
  • Difficulty walking & impaired coordination■■■■■■ same as last one
  • Dropping or throwing things uncontrollably■■ recently threw hot coffee in my face. That was disturbing.
  • Peripheral neuropathy or partial paralysis■■■ not sure I understand but sure
  • Fatigue, Chronic Fatigue Syndrome ■■■ all the fucking time
  • Light-headedness/wooziness □□□ yup that happens when walking
  • Tremors/shakinessSeizures ■ on rare occasions

DIGESTIVE & EXCRETORY

  • Constipation ■■
  • Diarrhea ■■
  • Gastritis ■ not sure what that  is but if it includes flatulence count me in
  • Irritable bladder; trouble starting/stopping; interstitial cystitis ■
  • Nausea, vomiting & stomach pain or GERD (gastroesophageal reflux disease) ■■no vomiting but the rest happens

GENERAL WELL-BEING

  • Heavy fatigue ■■ think we covered this before
  • Sleep patterns disrupted (too much/too little), early awakening, unrestful sleep ■■■ I am experiencing segmented sleep I wake up every four hours. Sometimes I cant get back to sleep
  • Weight change (loss/gain), Fever/sweats/chills ■■■ my abdomen has recently gotten bigger could also be a cancer growing due to my exposure to asbestos. A lot of asbestos.
  • Chemical sensitivities ■■
  • AllergiesRash – Fewer than 50% of infected recall a rash – DO NOT rely on a rash to diagnose infection
  • Multiple & continual infections of different kinds
  • Recall having flu-like symptoms that you never seemed to recover from fully
  • Low body temperature
  • Symptoms change; come and go■■■
  • Phantom smells ■■ strangley enough had some of those but none smelled of burnt toast
  • Swollen glands or lymph nodes ■■■■ got those right now but only on my left side which may point to a cancer in my abdomen

Update Mar 21:

I woke this morning with chest pains. It feels like a heart problem. It is pounding I am shaky, I  am not that interested in going to a hospital that has continuously refused me healthcare. Especially during a pandemic that kills men my age. I would rather die at home than die with the surely faces I  have met with at Fairview Hospital time and time again.

. A few months ago i saw Dr. Irvine at Fairview hospital, we were getting along very well he was friendly and promised to book both a stress test and a carotid test. When I left there I stopped at the nurse’s station where he was sitting. He went from friendly to extremely hostile. I assumed it was something said by the nurses at the station. The tests were never ordered. I also believe he is behind the way I  was treated at peace river hospital. I stopped by Fairview that morning and saw the waiting room was full. I mentioned to the woman Juliet at the front counter that I had business in Peace River so I would go there. Irvine was on that morning. I left him a note asking why the tests were not ordered..

I am starting to believe what I  heard someone say that there really is a doctor at Fairview hospital the locals call Dr. Death.

If you want to know why I  don’t trust Alberta Health read the post called my health. It needs a rewrite.